Unwavering Devotion: Husband’s Unconditional Support as Couple Embraces Parenthood Amidst Challenges of 90% Burn Scars (Video)


How I felt.

I felt very happy, very fulfilled.

My pregnancy.


She was very calm, thank God.

There were some complications because of my situation, you know, my problem, but the pregnancy was uneventful and very peaceful, beautiful.

This is Zaia, my princess, Edmilson, extraordinary.

He is incredible.


He is wonderful.

He helps me with everything with these Pinos.

Seven months have been very fast, but they have been like this, the best months of my life.


It’s been wonderful.

Every moment with her is very incredible, very special.

She is very perfect.

My name is Karine.


They judge me on social media.

I cut a daughter in these conditions.

The name of the problem I have is xerodestics.

It is a rare disease, true, affecting one child in every million.

Well, this disease.


It limits us and prevents us from scratching ourselves with the sun or any type of light that transmits ultraviolet rays.

When I was three years old, I was diagnosed with xeroderno pigmentosum.

Every time I exclude myself from the sun, I am subject to my skin showing these little spots that are skin cancer.


I have already had 219 surgeries performed on me, all to remove skin lesions.

Some images, others simpler, like this one of Kelly, when I found out I was pregnant, that I was diagnosed with two nodules in my lung.


And until then these nodules were stable and the doctor was just monitoring them through examinations in April, yes, some other lesions appeared, you know, on the skin, on my back, which also needed to be operated on, and these lesions were causing a lot of pain .

So they needed to remove the first lesions and then perform surgery.

Until then I didn’t know I was pregnant, only that I already was.



Today I am very grateful to God.

Right, because if it weren’t for these injuries I probably would have lost it, right?

Unfortunately, the sides I took with my clan were confirmed in the biopsy, which was new and already at home.

Well, I’m going to have to undergo treatment today.

What chemotherapy today, in therapy, I’m just waiting for the results of the treatment I’m going to undergo.


I am using these eye drops because about three months ago I was losing vision in my right eye.

I can’t see in my left eye anymore, I was losing it, I don’t even have vision in my right eye.

So I started this treatment with these eye drops to regain my vision and thank God it is working and the condition does not affect my personal life, not even being a mother, because I always do the best I can in everything I do.

According to doctors, the chances are 1%.

This would only be possible if my partner had the same condition as me or was related to me.


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